Put an end to DIPG through prayer, research & awareness.
What is DIPG?
Diffuse Intrinsic Pontine Glioma (DIPG) is a pediatric brain cancer with a 0% survival rate.
Facts about DIPG
The deadliest cancer in existence
About 300 children between the ages of 5 to 9 are diagnosed with DIPG every year. The median amount of time the child stays alive after diagnosis is 9 months.
The tumors that cause DIPG appear on the pons - an area in the brainstem responsible for controlling life-sustaining functions like breathing and blood pressure. Children with DIPG commonly experience painful symptoms like headaches, limb weakness, nausea and vomiting, as well as difficulty seeing, hearing and eating.
The leading cause of brain tumor death in children
In 1962, American astronaut Neil Armstrong’s two year old daughter - Karen - died from DIPG. Over the past 60 years, no new treatments have been developed.
Radiation may temporarily relieve symptoms, but has unpleasant side effects and ultimately does not affect survival rate. Often, families are often told to go home and make memories with their children rather than undergo aggressive treatment.
The most underfunded cancer in the US
Only 4% of federal funding for cancer research goes to pediatric cancers, of which DIPG receives an even smaller fraction.
To date, Storm the Heavens has allocated $794,088 to fund clinical trials and research that will create a world in which no child dies from DIPG.